💚 Lyme Awareness Day 18: Your Fact! 💚

For Lyme Disease Awareness Month Day 18, I am asking you to share your fact about Lyme Disease.

What would you like others to know about Lyme disease?

➡ What does it feel like to have Lyme disease?

➡ How has Lyme disease affected your life, body, loved ones, finances…?

➡ Share your Lyme fact in the comments! The more we talk about Lyme Disease, the more Awareness we will raise!

💚 Lyme Awareness Day 17: Lyme is a PANDEMIC💚

Yes, I said it: a PANDEMIC. If you have been following me, you have seen me talking about a pandemic for YEARS before… some guy ate a bat… and then everyone ran out of toilet paper…

ANYWAY,

➡ According to the CDC, there are 300,000 new cases of Lyme each year in the United States, however because of inaccurate testing (which I talked about on day 7), many leading Lyme disease organizations estimates that there are up to 2 MILLION new cases in the United States alone.

➡ To put these statistics in perspective (but not to compare diseases, because all of these diseases are terrible to get), breast cancer has 232,000 new cases per year, HIV has 50,000, and Hepatitis has 17,000.

➡ West Nile Virus has 2,000 new cases per year, yet receives over twice the funding as Lyme.

As of making this video, the United States 1.42 million cases of COVID-19. 80-99% of these cases recover in about 2 weeks. For Lyme disease, 40-63% of Lyme patients continue to report symptoms after 30 days of standard treatment. This is where the term chronic lyme disease comes from, which I will talk more about in a later video.

➡ While it is very possible to die from Lyme-related complications, it is relatively rare. It will more likely cause debilitating issues and ruin your life, causing you to live in some sort of zombie-like state, where your body feels like death and you don’t have much of a life, but somehow your still living this living death.

BUT! THERE IS HOPE! ❤

I recovered from Lyme disease after living with it for 10 years, and others have too. Unfortunately, not everyone will respond positively to the treatments that worked for me, which is why it is still an issue. For more information on my treatments, check out my Chronically Healed video or my Lyme disease video day 8.

This is why I am so adamant about Lyme Disease awareness. It is the silent pandemic that no one seems to care about. But you can help! I challenge you to share this video or any of my lyme disease videos, or even just tweet one random fact about Lyme disease.

Let’s get the momentum rolling for this Lyme Disease Awareness Month! The definition of a pandemic is “a disease prevalent over a whole country or the world,”  Lyme has been reported in all 50 states and 6 continents. So, hashtag it: #Lymepandemic!

💚 Lyme Awareness Day 16: Mental and Emotional Health 💚

This is one of the most important Lyme facts I am sharing with you, so listen up!

➡ Anxiety, depression, and emotional sensitivity can be SYMPTOMS of Lyme disease. Lyme can cause anxiety and depression as symptoms.

➡ Many Lyme patients are falsely diagnosed with mental health disorders, preventing them from receiving proper treatment.

I had TERRIBLE anxiety! It felt like my brain was constantly and frantically trying to claw itself out of my skull. It felt like there were loud, overlapping commercials SCREAMING in my mind constantly. No wonder I had insomnia! It was so strange how my mind was always freaking out, because I lived a pretty calm life.

I can’t imagine what this anxiety would be like if I had been a child. You would have absolutely no way to describe it, let alone manage it. Many children with Lyme disease have behavioral issues, and I completely understand why if they are experiencing the anxiety like I did. I would definitely act out if I had anxiety like that and had not developed the cognitive skills yet to communicate about what it was I was feeling.

➡ I tried everything for my anxiety. No pills helped. Therapy helped me cope, but didn’t really help the symptoms. Nothing helped until I was able to effectively treat the Lyme. Once the Lyme was gone, my anxiety vanished.

➡ I also used to think I was immature for crying over little things. I would be super happy one day, and the next, crying my eyes out. “Why am I even crying?” “I DON’T KNOW!” But once the Lyme was gone, so was my emotional sensitivity.

It could be detrimental to treat your anxiety or depression as a mental issue, WHEN it is being caused by a physical issue. It is never your fault if you have anxiety or depression, whether it is caused by a physical or mental issue.

❤ Living with a debilitating and isolating illness can also lead to anxiety and depression, which I will talk about more in a later video❤

💚 LYME PATIENTS: What are your mental and emotional symptoms? 💚

💚 Lyme Awareness Day 15: Lyme disease can be debilitating 💚

We are just about half-way through Lyme Disease Awareness Month!  If you have been watching my lyme awareness videos, you have learned that many Lyme disease patients do not respond to a conventional 30-days of antibiotic treatment.

I have explained some of those reasons why, and how incredibly difficult it is to find effective alternative treatment when this happens.

Lyme disease can take a debilitating toll on the body with Exhaustion, pain, and anxiety.

➡ Many Lyme patients are unable to work, drive, or take care of themselves, resulting in a dire need for caregivers and financial support.

➡ Patients who were unjustly left undiagnosed and untreated face YEARS of recovery.

➡ Unfortunately, Lyme disease is not considered a “disabling condition” according to the US government, making it very difficult to receive disability payments.

💚 If you know someone with Lyme, BELIEVE them when they say their symptoms are debilitating 💚

➡ Getting out of the house takes extreme effort, and they are probably hiding their symptoms so they can appear as “normal” a possible. Lyme is sometimes called an “Invisible Illness” or “Invisible Disability”

❤ Thank you for your patience and understanding for those who have chronic Lyme disease! ❤

How has Lyme disease affected your ability to live life?

💚 Lyme Awareness Day 14: Co-Infections 💚

It’s Lyme Disease Awareness day 14, and today I’m talking about Lyme Disease co-infections

When you are bitten by an insect that carries the lyme disease bacteria, there is a good possibility that that insect is also carrying other diseases. These are called co-infections

➡ These infections are not all bacterial- some are viral and parasitical, meaning that antibiotics will not kill them.

➡ If antibiotics failed to treat your lyme disease, it could be because you have a co-infection💚

➡ Co-infections of Lyme include:

▫ Babesia ▫ Bartonella ▫ Mycoplasma ▫ Rocky Mountain Spotted Fever ▫ Anaplasma ▫ Rickettsia ▫ Ehrlichia

If you have Lyme, there’s a good chance you are carrying other tick-transmitted diseases. More advanced Lyme tests will be able to test for co-infections.

It is EXTREMELY important to know if you have had these co-infections because they can affect you for the rest of your life.

I had the Lyme co-infection babesia, which is a malarial-like parasitical infection

If you are ever diagnosed with babesia, you are banned from donating blood for the rest of your life. Even though I no longer experience symptoms, I can never donate blood because of this previous diagnosis.

Babesia is not really something blood donations check for, and some people have gotten infected with it from donated blood. There is also a chance that babesia can be transmitted through an infected organ, so please consider this when you opt to be a blood or organ donor if you have ever had Lyme+co

💚 LYME PATIENTS: What co-infections do you have? 💚

💚 Lyme Awareness Day 13: Celebrities with Lyme Disease 💚

You will be surprised to learn how many famous people have had lyme disease!

Avril Lavigne @avrillavigne (she actually wrote a song about struggling with Lyme disease called “Head Above Water” have a listen, it’s very powerful)

Justin Bieber @justinbeiber

Yolanda Hadid @yolanda.hadid (She wrote a book called “Believe Me: My Battle with the Invisible Disability of Lyme Disease)

Bella Hadid @bellahadid

Alec Baldwin @alecbaldwininsta

Shania Twain @shaniatwain

Debbie Gibson @debbiegibson

Kelly Osbourne @kellyosbourne

Ally Hilfiger @allyhilfiger (check out her book “Bite Me: How Lyme Disease Stole My Childhood, Made Me Crazy, and Almost Killed Me”)

If there are any more celebrities with Lyme disease that I missed, please share in the comments!

💚 Lyme Awareness Day 12: POTS can be caused by Lyme 💚

Welcome to Lyme Awareness day 12! On a previous day, I talked about some of the chronic illnesses that Lyme disease can “mimic” or cause. Today, I am going to talk about a specific medical condition that it can cause, Postural Orthostatic Tachycardia Syndrome, or POTS for short. It’s also called Dysautonomia. It is a dysfunction of the autonomic nervous system and causes symptoms like fast heart rate upon standing and feeling faint.

I’m highlighting POTS because this is very personal to me. I was disabled from POTS for many years.

I was told there was no cause or cure for it, but I might grow out of it in a few years.

No treatments helped me with this, and I was still very sick with it years after they told me I should have grown out of it.

I was part of a facebook group for POTS patients. Many people on there were getting diagnosed with Lyme, and recommended that I get a test, too.

My doctor highly doubted that I had it, but she was a very good doctor and listened to me anyway and ordered a lyme test.

She was SHOCKED when it came back positive! She now has all of her POTS patients get a Lyme test.

I finally had a cause for this unexplainable illness! Everything finally made sense, my body did not just malfunction for no reason.

Although it took another 4 years to effectively treat the Lyme disease, once I did, my POTS symptoms were GONE 😄 I no longer have POTS!

I am telling you this because I was sick with POTS for 6 YEARS before I was diagnosed with lyme. I wish I had known sooner that Lyme disease can cause POTS symptoms!

For more information about my POTS and Lyme Disease Journey, check out my video Chronically Healed

Have you been diagnosed with POTS and Lyme Disease?

💚 Lyme Awareness Day 11: Tick Bites 💚

Welcome to Lyme Disease Awareness day 11. Yesterday, I went over how some doctors will not test for Lyme because they falsely believe lyme disease does not affect their location. Today, I am talking about another reason why some doctors refuse to test for lyme: because of a lack of a tick bite or bullseye rash.

Many doctors believe that without a tick bite or bullseye rash, there is no need to test for lyme.

But half of the people who have tested positive for Lyme do not recall a tick bite or had a bullseye rash!

➡ Ticks can be so small that you never notice them, some as small as a poppy seed.

➡ Lyme disease is associated with the classic “bullseye rash” 🎯 However, fewer than half of Lyme patients report this symptom.

➡ Transmission of Lyme from tick to human takes place in a matter of minutes.

➡ Lyme is reported in areas without ticks, suggesting other insect bites (mosquitoes!) carry the disease.

💚 I was bitten by a dog tick when I was 12 years old. I was told this type of tick does not carry Lyme, but I did live in an area with deer ticks. I didn’t experience any symptoms until I was 15.

I was sick for 6 years before I was accurately tested for lyme disease.

If I had been tested for lyme when I first got sick, it would have been a lot easier to treat.

So, if you never had a tick bite or rash, do not rule out Lyme!

💚 LYME PATIENTS: Do you recall a tick bite? 💚

💚 Lyme Awareness Day 10: Location 💚

Welcome to Lyme Disease Awareness Day 10! There is still so much that I have to say about Lyme disease, so please continue to follow and subscribe and like, because this information is so important to know!

So, many doctors will refuse to test a patient for Lyme disease for various reasons. One of these is location.

Don’t ever let a doctor tell you that you can’t have Lyme because of your location!

➡ Lyme disease has been reported in ALL 50 states and 6 continents.

➡ So unless you live Antarctica, Lyme disease is always a possibility! NO one is immune from Lyme because of their location.

➡ If your doctor refuses to test you, it’s time to find a new, Lyme-literate doctor (an LLMD).

I recommend looking for Lyme Disease groups on facebook for your area. They will be able to find a doctor for you!

Tomorrow I am revealing another reason why some doctors will refuse to test for lyme.

💚 LYME PATIENTS: Where do you live? 💚

I was living in Illinois when I got sick with Lyme.